PVI is proud to announce this timely and necessary story gathering effort supporting The Jewish Healthcare Foundations’ Adolescent Behavioral Health Initiative. We are encouraging families to share experiences seeking mental health and/or substance use treatment for teens so that identified themes can inform how the behavioral health system works, and how our children’s care is delivered. We have launched goPVI.org/ABHI where stories can be submitted in written, spoken, or visual formats in order to invite sharing that is patient-driven and patient-focused.
PVI is committed to building a community of support, information, and encouragement through our #TellYourStory social media campaign where individual voices join with those of families facing the same challenges, with the same passion to have their child’s health restored. Join the conversation by engaging with Patients’ View Institute on Facebook and Twitter. Share the #TellYourStory flier with families whose voices need to be heard.
Read our News Release below for more details of PVI’s role in the Adolescent Behavioral Health Initiative:
Improving Teen Mental Health & Substance Use Crisis Treatment through Parent Stories
Baltimore, MD, February 20, 2017 – The Jewish Healthcare Foundation (JHF) has awarded Patients’ View Institute (PVI) a $20,000 grant to assist JHF in understanding barriers to care for teens seeking mental health and substance use treatment. The grant supports the multi-year Adolescent Behavioral Health Initiative, a community-wide effort to improve access to and accountability for effective services for adolescents experiencing a mental health or substance use crisis in Allegheny County, Pennsylvania. The Adolescent Behavioral Health Initiative is funded by JHF, the Staunton Farm Foundation, and The Pittsburgh Foundation.
PVI will support this effort through gathering stories from families with teenagers in need of mental health and substance use services. While the focus will center on western Pennsylvania, PVI will encourage all individuals and their loved ones to share their behavioral health-related stories. Project activities will also include working with community organizations and treatment facilities, in addition to outreach using social and traditional media.
Stories will be collected through late April 2017 at GoPVI.org/ABHI, and assessed to identify themes from the family perspective to ensure access to effective, patient-centered behavioral health services from crisis to stabilization. In addition to revealing insights for Allegheny County, Pennsylvania, PVI will look for national trends in the stories gathered through outreach to PVI’s nationwide patient community network.
“JHF looks forward to working with PVI to understand the families’ perspectives related to accessing behavioral health crisis interventions that lead to a rapid treatment connection. We feel PVI’s experience engaging with the patient community to amplify their voices will be of great value as we work to identify action items for improving the continuum of behavioral health services from crisis to stabilization,” says Robert Ferguson, JHF Director of Government Grants and Policy.
Since its inception in 2013, PVI has given voice to patients’ experiences with health care, elevating the patients’ viewpoint by collecting stories and assessing them to identify key themes and trends. By turning stories from patients and their loved ones into evidence-based data, PVI has been able to inform policy discussions, guide research institutions, and edify other gatherings of leaders working to improve the healthcare system.
Patients and loved ones often give PVI permission to share their stories, such as the difficulty of finding effective treatment for lifelong chronic pain, surviving devastating medical errors, navigating often complex and uncoordinated services, and coping with mental illness. PVI elevates awareness of these common experiences through the PVI Blog, PV Impact Awards held in partnership with The Leapfrog Group, and through robust conversations and information exchange via PVI’s various social media platforms
“It’s clear people need a platform for their stories to be heard and understood, and PVI provides a place for them to do that,” said Diane Stollenwerk, PVI Executive Director. “We’ve transformed more than 1,000 patient stories into true ‘patient-centered’ data thus far, identifying themes and insights to inform policy and practice. This gives patients and families a stronger collective voice, to more effectively partner with those we all rely on for our health and medical care.”
Since 2015, PVI annually recognizes outstanding patient achievements through The Patients’ View Impact Award, the only national award to highlight the power that patients can have in changing health care for the better. The Leapfrog Group, which serves as a national voice for health care purchasers and publishes the annual Leapfrog Hospital Safety Grade, co-presents the Awards with PVI. The awards are sponsored by the National Board of Medical Examiners.
Since the Adolescent Behavioral Health Initiative began in April 2016, JHF has worked to achieve a broad understanding of challenges encountered when seeking effective care during a behavioral health crisis. JHF has been analyzing data, mapping the continuum of services from crisis to stabilization, and organizing focus groups. These steps, coupled with PVI’s data and assessment of story themes, will result in JHF creating advocacy and action plans to improve the continuum of services from crisis to stabilization in project years two and three. The Adolescent Behavioral Health Initiative is guided by a 40-member advisory committee.
PVI is a 501(c)(3) non-profit committed to organizing and amplifying the viewpoint of patients to maximize its impact on quality of healthcare. PVI’s sole focus is to listen to patients, and apply the lessons learned to support and expand the role of patients, consumers and their family members in directly shaping health care so that it is patient-centered and works well to improve health for all individuals. For more information, visit gopvi.org.
About Jewish Healthcare Foundation (JHF):
The Jewish Healthcare Foundation (JHF) and its two operating arms, the Pittsburgh Regional Health Initiative (PRHI) and Health Careers Futures (HCF), develop and manage programs, research, training, and grantmaking to perfect patient care. JHF is also the fiscal agent for State HIV/AIDS funding in southwestern Pennsylvania. JHF is funded by public and private sources, and the JHF endowment. For more information, visit jhf.org.