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Robin Roberts: Patients Leading and Learning
In her book Everybody’s Got Something, Good Morning America co-host Robin Roberts writes movingly about her near-fatal battle in 2012 with MDS, a rare cancer of the bone marrow. Her sister donated life-saving stem cells, and today Robin is back on the air, back to her life. Yes, there were dark days (where she was…
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ABOUT PVI
As PVI prepares for its official debut Wednesday at the Hx Refactored health care design conference in NYC, we’d like to thank Paul Levy, advocate for patient-driven care and front-line driven process improvement, for this blog post (and words of encouragement!). PVI welcomes and may post guest posts that reflect and advance our values and mission. By Paul Levy (from his…
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Designer Hospital Gowns for Teens: Why it Matters
When you check your precious self into the hospital to be made healthy again, you must first surrender your clothes, your shoes and your jewelry — everything that you’ve selected to reflect a unique human being to the world. Then you’re wrapped in a gown that could have been cut from 20-year-old bedsheets. That’s especially…
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Yanling’s Story: A Wrong Decision, A Life Lost
Yanling’s story hits on a number of the Patient Voice Principles, including the need for appropriate treatment and explanation of less invasive alternatives, continuity in care, the importance of shared decision making, and respect for independently gathered information and research done by patients and their families. Even the professionals can make a wrong decision, and in…
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Dazed and Confused: A Terrible Office Visit!
Patient S. was feeling extremely agitated as she waited to see her new rheumatologist. She had just moved to a new town a few months ago, and her last office visit had been an emotional disaster. She had no idea if she was facing a serious health issue, or not. Several months ago, just a…
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Submissions Now Open! 2016 Patients’ View Impact Awards
2015 PVImpact Award Winner Rick Stone (Center Right), with (from left) Leapfrog Group President & CEO Leah Binder, PVI Executive Director, Pat Mastors, and PVI Chair of the Board, Diane Stollenwerk. Do you have a health care experience others should hear about? Is there a nurse, doctor, hospital or health insurer that deserves credit for…
