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Patient and Family Engagement Roadmap from Moore Foundation & AIR
to Patient and Family Engagement Need help figuring out what “patient engagement” is and how to get started making it work for you? Whether you’re a patient, family, care team or patient-facing organization, this unified roadmap, created with support from the Gordon and Betty Moore Foundation by the American Institutes for Research, can help. Watch…
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Kristin Coppen’s Story: “Chronically Kristin”
Before the age of 24, Kristen was diagnosed with multiple chronic diseases. As a young patient, Kristen did not let her medical issues define her. Instead, through her blog “Chronically Kristen” she became a supporting voice for others who suffer from similar conditions where they look normal and healthy, but in actuality are not. Kristin’s story…
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A $10 Million Victory for Patients
Have you ever tried to get a look at your doctor’s notes about you? The “Open Notes” project is a movement pioneered and tested by three hospital systems, and deemed a great success when results of a two-year study were published in 2012. Today’s news: The Open Notes team just announced $10 million in funding from…
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Narrative Playbook – Patients’ View Institute
In this era of high-tech medicine, our human “stories” can build important bridges of connection and empathy between patients and care teams. But because time is short or we don’t know where to start, it’s tough to work “story” into the conversation. Wouldn’t it be great to have a Playbook? Something to show everyone how…
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Peanut Butter and NyQuil Sandwiches: A Tale of A Drug Storage No-No
By Emily Henry Here’s how I deal with my medicines: I throw them all into a box in the kitchen pantry next to the peanut butter and forget about them. The result is that if on a rare occasion I need a dose of NyQuil, I’ll pull out the crusty bottle and check the expiration date only…
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Lenore’s Story: I Could Have Saved My Daughter’s Life
Knowledge is powerful — so powerful it might have saved Lenore Alexander’s 11-year-old daughter, Leah. But, tragically, the lessons came too late. This week, we look at a Patient Voice Principle that falls under the category of “Compassionate Human Interactions:” a patient or care giver’s right to be informed of adverse events “in a timely way,” and…
