Do you suffer from chronic pain? Do you feel your doctors don’t hear your voice? You are not alone.
Starting from a young age, Barby was an avid dancer and gymnast, but a progressive neuro-autoimmune condition led to a life of chronic pain. While it took time for doctors to diagnosis her condition, and there is not yet a cure, Barby uses this as her motivation to act as an advocate for both herself and others.
Barby was the living the dream she had trained for since 4 years-old. She owned a Cheerleading and Dance training company right out of college and then went on to be Washington State University’s Head Spirit Program coach. Though a perpetually hopeful and positive athlete, Barby had been battling chronic pain since 1997 when Endometriosis resulted in a full hysterectomy and left oophorectomy. Then, an 8-second car accident triggered debilitating pain and complications that left Barby in a wheelchair, seeking proper diagnosis and treatment from over 43 doctors. After 3 years of mistreatment, over-treatment, and unnecessary major surgeries resulting in added complications and pain; Barby was finally properly diagnosed with a progressive neuro-autoimmune condition, Reflex Sympathetic Dystrophy (RSD). that affects multiple systems in the body. Since then, Barby has been in and out of remission, and though she is no longer able to physically cheerlead, she had become a “Cheerleader of Hope and Possibility” for millions of other who, like her, suffer from chronic pain.
Because Barby knows first hand the many obstacles chronic pain patients encounter when looking for relief, answers, and effective treatment; she founded the International Pain Foundation (iPain). iPain is a resource of hope, motivation, and inspiration for the community of chronic pain patients and caregivers. iPain has over 150 delegates and 1500 volunteers from all over the world who attend international medical conferences to make the latest information regarding usable tools, resources, and treatments across diagnosis accessible for chronic pain patients.
Barby’s story strength, persistence, and advocacy illustrates the PVI Principles of Empowerment and Information.
Watch Barby’s story below: