Author: Sandra Rosenbluth

Lisa Morrise’s Story: Advocating for a Daughter with Pierre Robin Sequence

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Pierre Robin Sequence (PRS), named after French dental surgeon Pierre Robin (1867-1950) is a rare birth defect that affects the head and face, and can show as a small lower jaw, a tongue that is placed further back than normal, and blockage of the airways. The condition leaves many children unable to breathe or swallow, … Continued

Tricia Lawrensen’s Story: Leveraging a Lifetime of Overcoming Health Challenges Into Lessons to Help Others

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At an age when many people were healthy and energetic, Tricia Lawrenson was learning that health problems were a fact of her life. When she was 24, Tricia’s Cystic Fibrosis (CF), had progressed to the point where her doctors decided she needed a double lung transplant.  As scary a prospect as that was, her circumstances … Continued

2017 Patients’ View Impact Awards Winners Announced! Bringing Patients Front and Center

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Five awards and several honorable mentions brought patient honorees on stage last night (December 7th) for the 2017 Patients’ View Impact Awards, the only national awards that honor the power of one patient’s story to impact health care for the better. For the third year in a row, the awards were presented with the Leapfrog … Continued

Sue Hassmiller’s Story: On the Other Side of the Bed – Experiencing anew the critical value of compassion in care when my husband has a devastating accident

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As a nurse myself, I received the biggest wakeup call of my life when my husband of 37 years became an instant quadriplegic as a result of a bicycle accident. He fought for his life for 10 days in an ICU and then succumbed to sepsis. The experience was heartbreaking in every way possible and … Continued

Karla Buchanan’s Story: Fostering and Adopting Children with Special Needs

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The Buchanans have fostered dozens of children with behavioral health challenges. Though none of their adopted children are biologically linked, Karla likes to say they are “linked by love.” As such, they never turn a child away, despite not being a therapeutic home, because every child deserves a chance to be a part of a … Continued

Lynn Wilson’s Story: Sharing the Lessons of Her Husband’s Courageous Battle with Cancer to Improve the Practice of Care

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“The best way to honor my late husband is to teach the teachable moments, good and bad.” On May 24th of 2005, Lynn’s husband, Lance, was told he had a malignant isolated cytoma in his left scapula. Despite multiple radiation treatments, in February 2006, Lance was formally diagnosed with Multiple Myeloma. After two stem cell … Continued

Katie Parker’s Story: Diagnosed with Breast Cancer at 36 and Using the Experience to Educate Young Women

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On May 23, 2010, Katie’s life was forever changed by a diagnosis of invasive ductal carcinoma, the most common form of breast cancer. At only 36 years of age, she had no family history, no palpable abnormalities, and a mistaken belief that you had to have a family history of breast cancer to get a … Continued

Patience Leino’s Story: Turning Heartache From Loss of Baby Into Passion For Building Collaboration with Medical Teams

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In 2006, I was expecting my first child. At the 18 week ultrasound, we were blindsided to learn our son had a complex congenital heart defect called Hypoplastic Left Heart Syndrome (HLHS). Survival required at best 3 open heart surgeries within the first 2 years of life and most likely a total heart transplant later. … Continued

Gabe Howard’s Story: Reflecting on the Mental Health Crises That Marked His Early Years and His Path to Helping Others

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Gabe Howard has bipolar disorder, but it took 24 years for him to be diagnosed as such. Despite many signs, including depression, mania, and anger, Gabe’s family believed his issues stemmed from a behavioral problem. As such, he spent his early years feeling alone and unloved, growing sicker and more isolated as the years passed. … Continued

Kristen Terlizzi’s Story: Raising National Awareness of a Potentially Deadly, Largely Unknown Threat to Birthing Mothers

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Continuing with C-section stories, (see Jill Arnold’s story from Wednesday), today we share Kristen Terlizzi’s journey with you, as she endured and overcame hardship during her second birth due to a largely unknown condition that resulted from a C-section during her first. In 2012, I was 30 and thrilled to be pregnant with my first … Continued