Author: Pat Mastors, PVI Executive Director

Designer Hospital Gowns for Teens: Why it Matters

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When you check your precious self into the hospital to be made healthy again, you must first surrender your clothes, your shoes and your jewelry — everything that you’ve selected to reflect a unique human being to the world. Then you’re wrapped in a gown that could have been cut from 20-year-old bedsheets. That’s especially … Continued

Racing to find a Cancer Cure: “No Brakes” for Jack

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I felt pretty terrible last December when I had to tell a nice woman like Jan Whelan that PVI could not consider her nomination of her husband, Jack Whelan, for the Patient Voice Impact Award (he was already a PVI advisor; that ruled him out). But her description of him was sure spot-on: “…an extraordinary … Continued

PVI is now Patients’ View Institute – and Here’s Why

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This week, the Patient Voice Institute becomes the Patients’ View Institute. Apparently, as we learned a couple of months ago, the phrase “Patient Voice” is trademarked. At least that’s what the letter from the lawyers said – the ones representing the company that claimed “trademark infringement”. After exploring our choices, voluntarily changing our name seemed … Continued

Cinderblocks 2016: Bring on the Patients!

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The irrepressible Regina Holliday is doing it again. This week will be the third time the mighty patient advocate, author and founder of the Walking Gallery of Healthcare is holding the “Cinderblocks” conference, a patient-led art and medical forum which has become sort of a revival meeting for patient advocates. Among headliner presenters is our friend … Continued

Jack, Geri and Allison: Defiant Patients

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“I’m sorry, there’s no easy way to tell you this.” Jack Whelan’s doctor followed up those words with a diagnosis of a rare, incurable blood cancer and a five-year prognosis. That was eight years ago. As he says in his blog, “Friends and family and many audiences have heard my “success story” beating that poor … Continued

If Air Travel Worked Like Healthcare:

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  “Sir. Please. Calm down and be realistic. I’m sure the system can be frustrating, but consumers don’t understand flight plans and landing slots. Even if they did, there are thousands of separate providers involved in moving travelers around, and hundreds of airports, and millions of trips. Getting everyone to coordinate services and exchange information … Continued

With Enormous Thanks to Modern Medicine – Part 1

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This Christmas Day, baby Zoe arrived early into the world, a 3 pound, 4 ounce bundle of love. She’ll need heart surgery as soon as she’s strong enough. Thankfully she’s in Boston at one of the world’s best children’s hospitals, and has loving parents and their extended families surrounding her. As soon as I’m allowed, … Continued

A $10 Million Victory for Patients

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Have you ever tried to get a look at your doctor’s notes about you? The “Open Notes” project is a movement pioneered and tested by three hospital systems, and deemed a great success when results of a two-year study were published in 2012. Today’s news: The Open Notes team just announced $10 million in funding from … Continued

Winner Announced – and More! 2015 Patient Voice Impact Award

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PVI is extremely grateful to the patients and families who shared their stories to be considered for the 2015 Patient Voice Impact Award! Below is the official news release with details of who won. In later posts we’ll share the judges’ thinking, what PVI learned through this process, and what’s ahead for 2016. December 2, 2015, … Continued

Mandy Zito’s Story: Helping Other Young Women with Cancer

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At the age of 33, Mandy was diagnosed with breast cancer. While she felt well supported by her family and doctors during the treatment process, she still felt like something was missing. After some reflection, she realized that she was not connecting with the other women she was undergoing chemo with because they were at … Continued