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Keeping patients in the dark = REALLY. BAD. IDEA.
PVI Advisory Group Member Casey Quinlan gives us her take on Dartmouth’s 2014 Summer Institute for Informed Patient Choice Conference. The following contains excerpts from “Keeping Patients in the Dark”, from her Patients for Clinical Research Blog. For the complete text, please click here. I had the privilege of being awarded a seat at Dartmouth’s 2014…
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PVI is now Patients’ View Institute – and Here’s Why
This week, the Patient Voice Institute becomes the Patients’ View Institute. Apparently, as we learned a couple of months ago, the phrase “Patient Voice” is trademarked. At least that’s what the letter from the lawyers said – the ones representing the company that claimed “trademark infringement”. After exploring our choices, voluntarily changing our name seemed…
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ABHI
Getting the Services Your Teen Needs–What’s Your Perspective? Is your teen struggling with mental illness or substance use? What have you experienced in seeking support and treatment? Have you learned something along the way that could help others? Your unique behavioral healthcare experience, no matter how big or how small, both positive and negative; has…
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Cinderblocks 2016: Bring on the Patients!
Regina Holliday The irrepressible Regina Holliday is doing it again. This week will be the third time the mighty patient advocate, author and founder of the Walking Gallery of Healthcare is holding the “Cinderblocks” conference, a patient-led art and medical forum which has become sort of a revival meeting for patient advocates. Among headliner presenters is…
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The Emerald City of Hospitals
The 4 Arch-Enemies of Patient-Centered Care Last year, when my daughter Jess was hospitalized for a rare and paralyzing nerve disorder, her room was an aging, cluttered cubicle with no shower. There were no gourmet meals, Egyptian cotton sheets, or concierge services. What mattered most, though, was the chair next to Jess’ bed that folded…
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Racing to find a Cancer Cure: “No Brakes” for Jack
Jack & me I felt pretty terrible last December when I had to tell a nice woman like Jan Whelan that PVI could not consider her nomination of her husband, Jack Whelan, for the Patient Voice Impact Award (he was already a PVI advisor; that ruled him out). But her description of him was sure…
