PVI Blog

Submissions Open: $1,000 for Story of Teen/Adolescent’s Struggle to Find Treatment

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Submissions are now open nationwide for the 2017 PVI Hope Award, honoring a first-person patient or family story about an adolescent or teen’s struggle to get appropriate help with a mental health and/or substance abuse crisis. The award, co-sponsored by The Patients’ View Institute (PVI) and the Jewish Healthcare Foundation (JHF), comes with a $1,000 … Continued

A Mother’s Story: Even for a Human Services Employee, Getting Help for Her Son was Confusing

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If your child was experiencing a mental health crisis today, you would have a slew of questions requiring immediate, coordinated, and compassionate answers…providing clear direction. Who do I call? What are our treatment options? What’s the process for enrolling? When will treatment begin and what will happen next? We need help now. Here, a mother … Continued

Matt Ellison’s Story: How My Diagnosis Has Changed Me

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“Disease as a Life-Changing Opportunity”? Yes, according to PVI team member Matt Ellison, whose “opportunity” arrived in June 1999, following up a routine physical in which his white blood cell count was minimally elevated. Below is ‘his-story’, told with the elegance of a deeply thoughtful and talented writer. It touches on the PVI Principles of … Continued

Abigail Burford’s Story: The Year of Return to New Self

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Abigail Burford sheds glorious light on how her elective hip surgery ignited a transformative path to healing the physical ailments of surgery and autoimmune disease, alongside mental trauma, in a holistic way that resulted in the greatest act of self-love. When her hip surgery led to a diagnosis of rheumatoid arthritis and anemia, Abigail decided to seek non-pharmaceutical therapies. In conjunction with her primary … Continued

PVI Awarded Grant to Assess Teen Behavioral Health Care from Families’ Perspective

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PVI is proud to announce this timely and necessary story gathering effort supporting The Jewish Healthcare Foundations’ Adolescent Behavioral Health Initiative. We are encouraging families to share experiences seeking mental health and/or substance use treatment for teens so that identified themes can inform how the behavioral health system works, and how our children’s care is delivered. We have launched goPVI.org/ABHI where stories … Continued

Tom Seaman’s Story: From Severe Chronic Pain & Morbid Obesity to Joyful Bike Rider!

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In the Summer of 2001, while pursuing a master’s degree in counseling, Tom Seaman noticed a problem with the muscles of his neck. His head would involuntarily flop from left to right when moving from seated to walking. After seeking treatment for painful muscle spasms and contractions from chiropractors, MD’s, an internist, a massage therapist, and physical … Continued

Charisse Montgomery’s Story: How Hospital Silence Helped This Family Find Their Voice As Patient Advocates

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Few things in a hospital setting are more terrifying than silence…it almost always means that something has gone wrong. Charisse first experienced this when she was pregnant with her son, Richie. During a routine ultrasound, the technician was happily chatting with both her and her husband, Richard, when suddenly she stopped talking. This silence later … Continued

Nancy Michaels’ Story: What Docs Can Learn from Hair Stylists

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In 2005, at the age of 41, Nancy Michaels became fatally ill, and underwent emergency surgery for a liver transplant. While she previously was a physically healthy adult, she experienced serious medical complications both during and after surgery. Not only was she pronounced clinically dead twice while in surgery, the surgery left her in a … Continued

Donna Helen Crisp’s Story: Medical Errors & the Call to Accountability as Experienced by A Nurse Ethicist and An Author

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“A problem not acknowledged is a problem that cannot be studied or resolved. Many patients get worse, or die, without knowing what went wrong,” says Donna Helen Crisp, Nurse Ethicist and author of Anatomy of Medical Errors: The Patient in Room 2. Never before has it become so critically important and possible to become active participants … Continued

Darcy Daniels has advice for “Impatient, Empowered” Brave Fragile Warriors

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  Darcy Daniels, mother of 2016 Patients’ View Impact Award Winner Wendy Wooden, took moments of reflection to digest and blog about her experience attending the PVI Impact Awards, a day she described as powerful, overwhelming, and thought-provoking. So what was it like having the attention of over 300 healthcare heavyweights and innovators including The Leapfrog Group, National … Continued