PVI Blog

Submit Your Story – $1,000 cash prize and national platform

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Can your health care story inspire, enlighten or teach others? Submissions are now open for the 2017 Patients’ View Impact Awards. Winners receive $1,000 cash, travel and lodging to attend award ceremony, and national recognition for the critical value of patient perspective.  Check out last year’s winners and full details below! This year there will be … Continued

For My Daughter, the Patient: Compassion Made All the Difference

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The more patients’ stories we review here at PVI (1,200-plus to date), the more we’re struck by how compassion can be a lifeline in the middle of a terrifying experience. Here’s my own story below, from four years ago. What’s yours? Hospital transport arrives to take my daughter just after 9 AM. We’d been told … Continued

Have You Ridden the Antibiotic Roller Coaster?

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For some, the twists and turns can be many.  Amy Moser shares a story of her life changing experience with Fluoroguinolones, and includes lots of great resources for others who may be struggling. Hi there, we need to talk. My name is Amy Moser. I have almost written this post at least 20 times and … Continued

Childhood Trauma Brings on Adult Illness – It Happens to Many of Us

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The story linked below – of a woman’s childhood trauma manifesting in life-threatening illness later in life – really hit home for me. My ‘childhood trauma’ happened when I was 14 years old. Our phone rang at 1:00 am. One minute later, the doorbell rang. On the phone was a doctor telling me my mother … Continued

I Pray For My Patients

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PVI recently was contacted by Dr. Sosena Kebede*, a physician at Johns Hopkins who is passionate about helping patients engage meaningfully as stewards of their health care journey. Below, she writes a heartfelt and brutally honest piece about the obstacles, limits and complexities physicians face in caring for their patients on a daily basis.  It can … Continued

“Losing My Husband Changed My View of Medical Care”: A Conversation with Sue Hassmiller of the Robert Wood Johnson Foundation

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To the nation’s nurses, their work and their profession, Susan Hassmiller is something of a rock star. She joined the Robert Wood Johnson Foundation (RWJF) in 1997, where she’s senior adviser for nursing. In this role, she shapes, leads, and presents to groups around the world about the Foundation’s nursing strategies and the vital role … Continued

Shouldn’t Schools Be Helping Kids Cope With Mental Health Issues?

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There’s a connection between the Congressional health care budget battles in the headlines and the stories we at PVI have been reviewing in the last few months…many of which are terribly sad: a young girl abused by her father and now struggling with substance abuse and cutting. A parent whose child erupts in violence, seemingly for … Continued

Submissions Open: $1,000 for Story of Teen/Adolescent’s Struggle to Find Treatment

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Submissions are now open nationwide for the 2017 PVI Hope Award, honoring a first-person patient or family story about an adolescent or teen’s struggle to get appropriate help with a mental health and/or substance abuse crisis. The award, co-sponsored by The Patients’ View Institute (PVI) and the Jewish Healthcare Foundation (JHF), comes with a $1,000 … Continued

A Mother’s Story: Even for a Human Services Employee, Getting Help for Her Son was Confusing

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If your child was experiencing a mental health crisis today, you would have a slew of questions requiring immediate, coordinated, and compassionate answers…providing clear direction. Who do I call? What are our treatment options? What’s the process for enrolling? When will treatment begin and what will happen next? We need help now. Here, a mother … Continued

Matt Ellison’s Story: How My Diagnosis Has Changed Me

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“Disease as a Life-Changing Opportunity”? Yes, according to PVI team member Matt Ellison, whose “opportunity” arrived in June 1999, following up a routine physical in which his white blood cell count was minimally elevated. Below is ‘his-story’, told with the elegance of a deeply thoughtful and talented writer. It touches on the PVI Principles of … Continued