About PVI

We are a 501(c)(3) non-profit organization committed to organizing and amplifying the patient voice, so we can have more impact on the quality of care we receive.

We are a member of the National Quality Forum, and have strong relationships with leaders in healthcare and related industries. However, our hearts and minds are all about the patient perspective. We welcome you into our community regardless of where you live, how you live, or what language you speak.

The why of PVI

We learn about which car to buy and restaurant to try by checking websites that show others’ experiences. But when it comes to making health care choices, more than 90 % of patient experiences are not collected or published.* How can anyone learn from them?

Sure, health care is more complicated than cars. That’s one reason the system isn’t working for everyone. Our care teams may include some of the most caring people on the planet, but medical mistakes are the third-leading cause of death. That’s in a country where medical care costs more than in other developed nations.

The founders of PVI all had experiences that showed them "better" is not just possible, but doable—when things are done right.

Maybe you did, too.

Or maybe your care was so terrific that others can learn from your experience.

Together, we can help make things better. Each of our health care experiences as patients is a unique little piece, that when put all together, can show us where opportunities for improvement are biggest. The Patients' View Institute (PVI) was formed to bring these pieces together.

We’re gathering what you tell us, organizing it, and using it to advocate for policies and priorities that will best serve our communities, empower our care teams to work more effectively with us, and save lives.

We call that “the democratization of health care,” and it is only the first part of our plan, since a wise man once said:

Democracy cannot succeed unless those who express their choice are prepared to choose wisely. The real safeguard of democracy, therefore, is education.

—Franklin D. Roosevelt

Your experiences will help form the basis for PVI education and training, and other initiatives designed to bring all of us into a better health care world.

Thank you for being part of it. 

* CAHPs (Consumer Assessment of Healthcare Providers and Systems) survey scores are touted as the “Kelly Blue Book” of patient viewpoints—the only transparent, singular national database of “patient experiences” in the United States. And indeed they offer a valuable tool, providing an “apples to apples” comparison of patient experiences in hospitals and other health care settings. But the shortcomings of using only these survey results include the following:

  • They only measure patient experiences on the issues addressed in the surveys.
  • The surveys are curated, administered and harvested through the provider chain. Patients are directed in how and what they will report.
  • They have no “comments” fields so patients cannot offer any feedback outside of the questions the survey asks. (Except when added for internal purposes)
  • They miss a lot. HCAHPS (hospital) surveys, for instance, gather comments from 3 million patients per year, out of a total 35 million in-patient hospitalizations. These surveys miss more than 90 percent of patient experiences.